EuroLyme

EuroLyme EU Petition

 

Reliable blood tests for Lyme disease

EuroLyme has launched an EU Petition.
https://www.europarl.europa.eu/petitions/en/petition/content/0986%252F2023/html/Petition-No-0986%252F2023-by-John-Vandeput-%2528Belgian%2529%252C-on-behalf-of-EuroLyme%252C-on-reliable-blood-tests-for-Lyme-disease

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The petition is available in 24 languages.


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Title :
Petition No 0986/2023 by John Vandeput (Belgian), on behalf of EuroLyme, on
Reliable blood tests for Lyme disease

Summary :
The petitioner makes reference to the European Parliament Resolution of 15 November 2018 on Lyme disease (Borreliosis), highlighting the need for more reliable blood tests for the diagnostic and screening of this illness.
In his opinion, the tests should cover all Borelia species and repeated testing, using several existing tests, should be performed in an effort to develop better perspectives of treatment.

Original text :
The European Parliament resolution of 15 November 2018 on Lyme disease (borreliosis) (2018/2774 (RSP))
asks for more reliable blood tests.
Since the reliability of existing Lyme blood tests is not well examined, a big comparison is needed.
All borrelia species should be included.
Research based on tests (even if experimental) showing the end an active infection, can bring more accurate views on the treatment.
Therefore repeated testing of a patient group with the few current blood tests showing the end of an active infection, needs extra attention.
Blood tests to be compared are :
- DualDur;
- Phelix Phage;
- EliSpot;
- TickPlex;
- several evolved ELISA;
- several evolved (Western)Blot.
For understanding the link with patient symptoms, the blood test results can be compared to a questionnaire (e.g. Horowitz Lyme-MSIDS Questionnaire).

 

European Commission notice to the PETI committee about the our petition.
The petition committee counts 66 Members of European Parliament.
The notice is available in 24 languages.
Quote : It is expected that with improvement of clinical approaches to testing for Borrelia the performance of the tests will also improve.
https://www.europarl.europa.eu/doceo/document/PETI-CM-760964_EN.pdf

 

EuroLyme groups

Borrelia och TBE föreningen www.borrelia-tbe.se Sweden
Suomen Lyme Borrelioosi ry www.borrelioosi.net Finland
Lyme Lives Here Hungary - Rusznyák Veronika www.facebook.com/magyar.egyesulete Hungary

 

Petition supporting groups

Pacjenckie Forum Boreliozy https://www.facebook.com/FundacjaPomocyBorelioza Poland
Lyme Chat - Éire ⓘINFO https://www.facebook.com/groups/751946861671609 Ireland
Lyme in Italia e nel mondo - Prof Trevisan non ci lasci senza voce ⓘINFO https://www.facebook.com/groups/1005406752935911 Italy
OnLyme-Aktion.org https://www.onlyme-aktion.org Germany
Borreliose Gruppe ⓘINFO https://www.facebook.com/groups/467824833229304 Germany
Borreliose Selbsthilfegruppe Hannover SHG ⓘINFO https://www.facebook.com/borreliosehannover Germany
Borelioza Lajmska bolest v Bǎlgarija https://www.facebook.com/groups/1710067495945200 Bulgaria
Lajmska bolest Bǎlgarija - Lyme disease Bulgaria ⓘINFO https://www.facebook.com/groups/622333491305001 Bulgaria
Lymevereniging https://www.lymevereniging.nl Netherlands
Stichting Tekenbeetziekten https://www.tekenbeetziekten.nl Netherlands

 

EuroLyme is in the EU Transparency Register no. 084971650245-03.

Let us remember the Members of the European Parliament their 2018 resolution.
Let us realize the big comparison of innovative existing Lyme blood tests.

 

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