Participation in European Union policy
EuroLyme participates in the European Union's debates and public consultations.
We are in the EU Transparency Register no. 084971650245-03.
The European Parliament resolution of 15 November 2018 on Lyme disease (borreliosis) 2018/2774(RSP) is a base for the European policy of EuroLyme.
In february 2022, Member of European Parliament Frédérique Ries and EuroLyme have jointly drawn 2 texts written questions to the European Commission.
Written question 1: Methods to diagnose Lyme disease (borreliosis) earlier and more effectively
Question PDF
Answer web HTML
Answer PDF
Written question 2: Compliance by Member States with the obligation to report cases of Lyme disease (borreliosis)
Question PDF
Answer web HTML
Answer PDF
In these 2 texts, we ask :
| 1 | new blood tests, in order to improve their reliability, at the beginning and at the end of the infection |
| 2 | follow-up of a group of patients to determine the useful duration of treatment, based on blood tests (even experimental) showing the end of an infection (such as the phage-based test) |
| 3 | to encourage the use of products based on plant extracts as an alternative to antimicrobials |
| 4 | information if Member States report cases of infected persons |
| 5 | which Member States have contacted the European institutions for logistical support aimed at information and awareness-raising campaigns |
| 6 | information on new methods implemented in recent years to detect, diagnose and treat the different forms of Lyme |
The answers are a basis for further dialogue with the European institutions.
EuroLyme took the opportunity to ask the first question in this event in Brussels on 13 March 2023.
We thank for great support for Lyme patients :
Emer Cooke, Executive Director, European Medicines Agency
Christopher Fearne, Deputy Prime Minister and Minister for Health, Malta
EuroLyme EU contributions :
| 18/9/2024 | DG Research | Feedback | European Research Area - the new ERA 4 years on: achievements, lessons learnt and the way forward |
| 6/5/2024 | DG Health / EU4Health | Survey | Targeted Stakeholders’ Consultation about EU4Health Annual Work Programme 2025 |
| 25/4/2024 | DG Health / DG Research | Survey | Horizon Europe work programme 2025 - Cluster 1 Health - Destination 3 Tackling diseases and reducing disease burden |
| 28/12/2023 | DG Health | Feedback | EU4Health programme 2021-2027 – interim evaluation |
| 1/7/2023 | DG Health | Feedback | Revision of the EU general pharmaceuticals legislation |
| 9/6/2023 | DG Health / EU4Health | Conference | EU4Health Stakeholders' Conference |
| 14/12/2022 | DG Health / DG Research | Survey | Horizon Europe – interim evaluation / Horizon 2020 programme - Final Evaluation |
| 2/9/2022 | DG Health | Feedback | Blood, tissues and cells for medical treatments & therapies – revised EU rules |
| 2/7/2022 | DG Health / DG Research | Feedback | Interim evaluation of Horizon Europe |
| 2/7/2022 | DG Health / DG Research | Feedback | Horizon 2020 programme - Final Evaluation |
| 13/6/2022 | DG Health | Survey | Stakeholders' Targeted Consultation on EU4Health priorities, strategic orientations and needs |
| 3/6/2022 | DG Health | Survey | Public Consultation on 3rd health programme (2014-2020) - final evaluation |
| 17/5/2022 | International Patient Organisation for Primary Immunodeficiencies | Webinar | PID Forum: Anti-Microbial Resistance and the PID Perspective |
| 5/5/2022 | DG Research | Feedback | A New European Innovation Agenda |
| 14/3/2022 | DG Health | Feedback | Antimicrobial resistance - recommendation for greater action |
| 18/11/2021 | ESCAIDE / ECDC | Webinar | European Antibiotic Awareness Day 2021 |
| 25/10/2021 | DG Health | Survey | Open Public Consultation on the revision of the general pharmaceutical legislation |
| 7/10/2021 | EUPHA / UK Public Health | Webinar | Public Health, Climate Change and Strategic Litigation |
| 28/9/2021 | WHO | Survey | Health impact assessment (HIA) and health assessment (HA) in environmental assessments - Status review 2021 |
| 10/9/2021 | DG Health / EU4Health | Webinar&Intervention | EU4Health Work Programme 2022: targeted stakeholder consultation outcome |
| 8/6/2021 | DG Health EU Health Policy Platform | Webinar | Public hearing on the opinion on mental health of health workforce and other essential workers |
| 25/4/2021 | DG Health | Feedback | Evaluation and revision of the general pharmaceutical legislation |
| 4/4/2021 | European HEpRA | Survey | European Health Emergency Preparedness and Response Authority Public Consultation |
| 25/2/2021 | University of Gothenburg Centre for Person-Centred Care | Webinar&Intervention | A European standard for patient participation in person-centred care |
| 24/1/2021 | DG Health | Survey | Online Public Consultation on the Revision of the EU Legislation on Blood, Tissues and Cells |
| 20/10/2020 | DG Health / EXPH | Webinar&Comments | The organisation of resilient health and social care following the COVID-19 pandemic |
| 15/10/2020 | EUPHA_CHR / IBTN / WHO | Webinar | Chronicdiseases Behavioural insights and public health |
| 23/8/2020 | DG Health / EMA / HMA | Survey | Public consultation on European Medicines Agencies Network Strategy to 2025 |
EU policy contact John Vandeput